All of Us Research Program

If you decide to join All of Us, we will ask you to share different kinds of information. We will ask you basic information like your name and where you live, questions about your health, family, home, and work. If you have an electronic health record, we may ask for access. We might also ask you to give samples, like blood or urine.

All of Us may last for at least 10 years. We hope you will stay involved over time. If you join, you can withdraw (“quit”) at any time for any reason without penalty.

You will be contributing to research that may improve health for everyone.

Here are some examples of what researchers might be able to discover:

• Better tests to see if people are sick or are at risk of getting sick.
• Better mobile apps to encourage healthy habits.
• Better medicine or information about how much of a medicine is right for each person.

We will take great care to protect your information.

Here are a few of the steps we will take:

• Information we have about you will be stored on protected computers. We will limit and keep track of who sees the information.
• We will remove your name and other direct identifiers (like your date of birth) from your information and replace them with a code.
• Researchers must promise not to try to find out who you are.
• We will tell you if there is a data breach.
• The All of Us Research Program has Certificates of Confidentiality from the U.S. government. This will help us fight any legal demand (such as a court order) to give out information that could identify you.