The future of health begins with you.

We’re calling on one million people across America to join researchers and advance how we prevent and treat diseases for generations to come.

All of Us Research Program

What is the All of Us Research Program?

Creating the right health approaches and care for the right person is called precision medicine. Getting the right information to make that happen is the goal of the All of Us Research Program from the National Institutes of Health (NIH).

To get there, we want to create the largest health data resource ever. By understanding people’s health, neighborhood, family, and lifestyle, researchers will have information to better understand health and disease. This information is essential to create a healthier future for generations to come.

 

Who runs the All of Us Research Program?

Henry Ford Health System is a partner of the National Institutes of Health’s All of Us Research Program in the Metro Detroit area.

Henry Ford is calling on volunteers like you to make history and change the way doctors and health researchers approach disease prevention and treatment. By securely sharing your health information, health care providers and researchers can better understand how individual and environmental factors impact health.

  • What is precision medicine?
    Precision medicine is health care that is based on you as an individual. It takes into account factors like where you live, what you do, and your family health history. The goal is to be able to tell people the best ways to stay healthy. If someone does get sick, precision medicine may help health care teams find the treatment that will work best.
  • What is the All of Us Research Program?
    The All of Us Research Program is a large research program. The goal is to help researchers understand more about why people get sick or stay healthy. People who join will give us information about their health, habits, and what it’s like where they live. By looking for patterns, researchers may learn more about what affects people’s health.
  • How do I join All of Us?
    There are four ways to join: You can visit the All of Us website joinallofus.org, download the All of Us app, call the Support Center toll free at 1 (844) 842-2855 or if you get health care at one of our affliated Health Provider Organizations, you can also join there.
  • What will you ask me to do?
    If you decide to join All of Us, we will ask you to share different kinds of information. We will ask you basic information like your name and where you live, questions about your health, family, home, and  work. If you have an electronic health record, we may ask for access. We might also ask you to give samples, like blood or urine.
  • How long will All of Us last?
    All of Us may last for at least 10 years. We hope you will stay involved over time. If you join, you can withdraw (“quit”) at any time for any reason without penalty.
  • Why should I join All of Us?

    You will be contributing to research that may improve health for everyone.

    Here are some examples of what researchers might be able to discover:

    • Better tests to see if people are sick or are at risk of
      getting sick.
    • Better mobile apps to encourage healthy habits.
    • Better medicine or information about how much of
      a medicine is right for each person.
  • What will you do to protect my privacy?

    We will take great care to protect your information.

    Here are a few of the steps we will take:

    • Information we have about you will be stored on protected computers. We will limit and keep track of who sees the information.
    • We will remove your name and other direct identifiers (like your date of birth) from your information and replace them with a code.
    • Researchers must promise not to try to find out who you are.
    • We will tell you if there is a data breach.
    • The All of Us Research Program has Certificates of Confidentiality from the U.S. government. This will help us fight any legal demand (such as a court order) to give out information that could identify you.

Dr. Francis S. Collins

Director, National Institutes of Health
The All of Us Research Program will change the way we do research. Participants will be partners in research, not subjects, and will have access to a wide range of study results. What we’re doing with the All of Us Research Program is intersecting with other fundamental changes in medicine and research to empower Americans to live healthier lives.

Dr. Esteban G. Burchard

Professor of Bioengineering & Therapeutic Sciences, University of California San Francisco
There are significant parts of our society that don’t respond equally well to medications that are developed. I’d like to make sure that we equally benefit from the recent advances in biomedical and clinical research.

Jamie Roberts, MPH, MA

Senior Clinical Project Manager, CTTI
I had a series of gastrointestinal bleeds for which they could find absolutely no source. That put me in the position of most of Americans where 75% of the health care we receive is not evidence based. To have my doctors say to me, “We really just don’t know what’s going to work for you or why this is happening to you” was very disconcerting.

About the Program