All of Us Research Program

What is the All of Us Research Program?

All of Us is a new research program from the National Institutes of Health (NIH). The goal is to advance precision medicine. Precision medicine is health care that is based on you as an individual. It takes into account factors like where you live, what you do, and your family health history. Precision medicine’s goal is to be able to tell people the best ways to stay healthy. If someone does get sick, precision medicine may help health care teams find the treatment that will work best.

To get there, we need one million or more people. Those who join will share information about their health over time. Researchers will study this data. What they learn could improve health for generations to come. Participants are our partners. We’ll share information back with them over time.

 

What is Henry Ford's role in the All of Us Research Program?

Henry Ford Health System is one of several prestigious health care organizations across the country supporting the All of Us Research Program, which is run by the National Institutes of Health (NIH).

We are calling on volunteers like you to help us make history and change the future of health. The health data you share will be added to the All of Us Research Program database so researchers can access this data to conduct studies.

 

  • What will you ask me to do?
    If you decide to join All of Us, we will ask you to share different kinds of information. We will ask you basic information like your name and where you live, questions about your health, family, home, and work. If you have an electronic health record, we may ask for access. We might also ask you to give samples, like blood or urine.
  • How long will All of Us last?
    All of Us may last for at least 10 years. We hope you will stay involved over time. If you join, you can withdraw (“quit”) at any time for any reason without penalty.
  • Why should I join All of Us?

    You will be contributing to research that may improve health for everyone.

    Here are some examples of what researchers might be able to discover:

    • Better tests to see if people are sick or are at risk of
      getting sick.
    • Better mobile apps to encourage healthy habits.
    • Better medicine or information about how much of
      a medicine is right for each person.
  • What will you do to protect my privacy?

    We will take great care to protect your information.

    Here are a few of the steps we will take:

    • Information we have about you will be stored on protected computers. We will limit and keep track of who sees the information.
    • We will remove your name and other direct identifiers (like your date of birth) from your information and replace them with a code.
    • Researchers must promise not to try to find out who you are.
    • We will tell you if there is a data breach.
    • The All of Us Research Program has Certificates of Confidentiality from the U.S. government. This will help us fight any legal demand (such as a court order) to give out information that could identify you.